1st Edition

Multiple Sclerosis Rehabilitation From Impairment to Participation

Edited By Marcia Finlayson Copyright 2013
    603 Pages 54 B/W Illustrations
    by CRC Press

    603 Pages 54 B/W Illustrations
    by CRC Press

    "MS is always in the back of your mind. If there is something you want to do, you always wonder if the MS will allow you do to it."
    —Darlene, living with MS for 22 years

    Living with multiple sclerosis (MS) is challenging and multidimensional. MS pervades all aspects of life: one’s body becomes unpredictable and unreliable, one’s identity and sense of self are tested, and relationships with others often change. MS symptoms emerge and remit; limitations evolve and progress. MS rehabilitation is an active, person-centered, and goal-oriented process embedded within a respectful and collaborative partnership between the person with MS and the members of his or her rehabilitation treatment team.

    Using the International Classification of Functioning, Disability and Health (ICF) as a guiding framework, Multiple Sclerosis Rehabilitation: From Impairment to Participation provides a comprehensive and evidence-based resource to inform and guide clinical reasoning and decision making during each phase of the MS rehabilitation process, from initial referral to post-discharge follow-up. With an emphasis on the application of evidence throughout the entire MS rehabilitation process, the specific objectives of the book are to increase the understanding of:

    • The nature and impact of specific impairments, activity limitations, and participation restrictions experienced by people with MS
    • How to select and use valid, reliable, and relevant assessment tools to inform the development of rehabilitation goals and intervention plans, and to evaluate outcomes

    This book provides information about the nature and impact of MS on the daily lives of people living with the disease, describes evidence-based assessment processes and instruments, and summarizes current knowledge that can inform goal setting and intervention planning. Thoughtful application of the knowledge contained in this book will inform and guide rehabilitation providers to work collaboratively with people with MS and enable them to achieve their goals for participation in everyday life.

    Foundations
    Introduction
    Marcia Finlayson
    Multiple Sclerosis Basics
    Michelle Cameron, Marcia Finlayson, and Jürg Kesselring
    Stories to Inform the Art of Rehabilitation Practice
    Marcia Finlayson
    An Overview of Multiple Sclerosis Rehabilitation
    Jutta Hinrichs and Marcia Finlayson

    Multiple Sclerosis Rehabilitation for Impairments in Body Structure and Function
    Fatigue

    Marcia Finlayson, Sverker Johansson, and Daphne Kos
    Balance Disorders
    Davide Cattaneo and Johanna Jonsdottir
    Muscle Strength, Tone, and Coordination
    Francois Bethoux and Matthew H. Sutliff
    Cognition
    Eynat Ben Ari, Ralph H. B. Benedict, Nicholas G. LaRocca, and Lauren S. Caruso
    Chronic Pain
    Dawn M. Ehde, Anna L. Kratz, James P. Robinson, and Mark P. Jensen
    Depression
    David C. Mohr
    Visual Impairments
    Julie Ann Nastasi, Stephen Krieger, and Janet C. Rucker

    Multiple Sclerosis Rehabilitation for Activity Limitations and Participation Restrictions
    Communication

    Kathryn M. Yorkston and Carolyn R. Baylor
    Mobility
    Susan E. Bennett and Marcia Finlayson
    Self-Care
    Susan Forwell and Amy Perrin Ross
    Domestic Life
    Marcia Finlayson, Eva Månsson Lexell, and Susan Forwell
    Employment
    Kurt L. Johnson and Robert T. Fraser
    Physical Activity and Leisure
    Matthew Plow and Robert W. Motl

    The Influence of Personal and Environmental Context on Multiple Sclerosis and Multiple Sclerosis Rehabilitation
    Influences of Age and Sex

    Marcia Finlayson, Tanuja Chitnis, and Elizabeth A. Hartman
    Other Health Concerns
    Ruth Ann Marrie
    Coping
    Kenneth I. Pakenham
    Physical Environment
    Dory Sabata and Nancy Lowenstein
    Caregiving
    Kenneth I. Pakenham and Marcia Finlayson
    Cultural Considerations
    Yolanda Suarez-Balcazar and Fabricio E. Balcazar

    Moving into the Future
    Optimizing Rehabilitation Experiences

    Marcia Finlayson and Lisa I. Iezzoni
    Index

    Biography

    Marcia Finlayson, PhD, OT (C), OTR/L is an occupational therapist and rehabilitation researcher who has dedicated her career to developing and sharing knowledge and resources that inform rehabilitation services for people with multiple sclerosis (MS). Through her roles as a researcher, educator, volunteer and clinician, Dr. Finlayson’s goal is to enable people with MS and their family members to fully participate in everyday life despite the challenges of living with this disease.

    Dr. Marcia Finlayson is an Associate Professor in the Department of Occupational Therapy at the University of Illinois at Chicago.

    "This is a comprehensive resource for medical professionals who serve clients diagnosed with multiple sclerosis. While the language is based on occupational therapy, the terminology and description of concepts can be useful to other disciplines. Filled with available contemporary research, this book captures the complexities of multiple sclerosis rehabilitation ideals clearly. To my knowledge, there are no other books that focus on the rehabilitation principles for use with clients with multiple sclerosis; therefore, this book fills the need for therapists serving this clientele in their practices. Weighted numerical score: 87 - 3 stars."
    —Robyn Otty, OTD, Maryville University, St. Louis, Missouri, USA, from Doody's Book Reviews

    "… provides an important resource in support of a comprehensive approach during each phase of the MS rehabilitation process, to enable people with MS to participate fully in everyday life despite the challenges that characterize living and coping with this disease. …The editor, Marcia Finlayson, has wide experience in, and an important career dedicated to, MS rehabilitation (as a clinician, researcher, teacher and volunteer) in Canada, USA and Australia. The chapter authors are carefully selected from wellknown international experts in each specific topic. … each chapter has been peer-reviewed by other selected experts."
    Journal of Rehabilitation Medicine 2014