1st Edition
Participation in Health and Welfare Services Professional Concepts and Lived Experience
Today, healthy ageing and active, meaningful lives are core values and aims for international and national health policies. Health services are challenged to ensure that the recipients of their services are active participants in their own care and beyond. Participation allows patients to become less dependent on healthcare providers, increasing their control over their own treatment and health. Increasingly, the idea of ‘participation’ is shifting, from participation in services to participation in mainstream society.
This book examines the concept of participation, as well as the different meanings it takes on in the context of health and welfare services. It asks how services can enable and stimulate participation outside of those services. The contributions in this volume particularly focus on participation as engagement in daily life and ‘everyday life’ in order to develop the field of participation beyond the sphere of health and social care services. This book will appeal to researchers in the fields of health and social care, social services, occupational therapy and the sociology of health and illness. It will be of interest to practitioners of health and welfare services.
List of contributors
Chapter 1. Introduction and rationale
Arne H. Eide, Staffan Josephsson, Kjersti Vik and Nils Erik Ness
Chapter 2. International classification of functioning, disability and health in the context of participation
Annelie Schedin Leiulfsrud
Chapter 3. Participation from the perspective of the user: from subjective experiences to lived experiences
Margareta Lilja and Staffan Josephsson
Chapter 4. Environmental determinants of quality of participation in healthcare settings among people with impairments and limitations
Jessica Dashner, Holly Hollingsworth, Jade Gross and David B. Gray
Chapter 5. Culture and participation
Skender Redzovic and Arne H. Eide
Chapter 6. A participatory approach to services and support
Peter Beresford
Chapter 7. Participation in the context of service delivery: a comparison between the views held by older service recipients and service providers
Aud Elisabeth Witsø and Kjersti Vik
Chapter 8. Participation at the interface with health and welfare services
Lisbeth Kvam, Heidi Pedersen and Aud Elisabeth Witsø
Chapter 9. The ICF and collaboration about participation
Ebba Langum Bredland and Kjersti Vik
Chapter 10. Parents' participation in child welfare investigation processes
Turid Midjo
Chapter 11. Shout out who we are! How might engagement in cultural activities enhance participation for people in everday occupations for people in vulnerable life situations?
Sissel Horghagen and Clare Hocking
Chapter 12. Impacts on work participation of people with mental health disability
Klara Jakobsen, Rosemary Lysaght and Terry Krupa
Chapter 13. Mental health, participation and social identity
Toril Anne Elstad and Gundi Schrötter Johanssen
Chapter 14. Digitalised communication and social interaction: new opportunities for young disabled people's participation
Sylvia Söderstrøm and Helena Hemmingson
Chapter 15. Participation in everyday life as lived negotiations: challenges and opportunities within a situated understanding of participation
Sissel Alsaker, Staffan Josephsson and Virginia Dickie
Chapter 16. Barriers to participation: time, social and physical obstacles for students with disabilities
Eva Magnus, Ulla Kroksmark and Kersti Nordell
Chapter 17. Participation and inclusion: mental health service users' lived experience – an international study
Elizabeth McKay, Deirdre Mahon, Grainne Donellan, Kirsti Haracz, Sarah Sheldon and Susan Ryan
Epilogue
Staffan Josephsson, Arne H. Eide and Kjersti Vik
Index
Biography
Arne H. Eide, Norwegian University for Science and Technology and SINTEF Technology and Society, Norway.
Staffan Josephsson, Norwegian University for Science and Technology and Karolinska Institutet, Sweden.
Kjersti Vik, Norwegian University for Science and Technology.
