Haemophilia in Aotearoa New Zealand: More Than A Bleeding Nuisance

1st Edition

Julie Park, Kathryn Scott, Deon York, Michael Carnahan

Routledge
February 11, 2019 Forthcoming
Reference - 240 Pages
ISBN 9780367134440 - CAT# K409601
Series: Routledge Studies in Health and Medical Anthropology

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Summary

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on long-term ethnographic research. The chapters consider experiences of diagnosis; how parents, children and adults care, and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. Whilst the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

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